creekfeet
03-14-2010, 10:50 AM
<meta http-equiv="Content-Type" content="text/html; charset=utf-8"><meta name="ProgId" content="Word.Document"><meta name="Generator" content="Microsoft Word 11"><meta name="Originator" content="Microsoft Word 11"><link rel="File-List" href="file:///C:%5CUsers%5CKassy%5CAppData%5CLocal%5CTemp%5Cmsohtml1%5C01%5Cclip_filelist.xml"><o:smarttagtype namespaceuri="urn:schemas-microsoft-com:office:smarttags" name="State"></o:smarttagtype><o:smarttagtype namespaceuri="urn:schemas-microsoft-com:office:smarttags" name="place"></o:smarttagtype><o:smarttagtype namespaceuri="urn:schemas-microsoft-com:office:smarttags" name="country-region"></o:smarttagtype><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> </w:Compatibility> <w:BrowserLevel>MicrosoftInternetExplorer4</w:BrowserLevel> </w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" LatentStyleCount="156"> </w:LatentStyles> </xml><![endif]--><!--[if !mso]><object classid="clsid:38481807-CA0E-42D2-BF39-B33AF135CC4D" id=ieooui></object> <style> st1\:*{behavior:url(#ieooui) } </style> <![endif]--><style> <!-- /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0in; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt; font-family:"Times New Roman"; mso-fareast-font-family:"Times New Roman";} @page Section1 {size:8.5in 11.0in; margin:1.0in 1.25in 1.0in 1.25in; mso-header-margin:.5in; mso-footer-margin:.5in; mso-paper-source:0;} div.Section1 {page:Section1;} --> </style><!--[if gte mso 10]> <style> /* Style Definitions */ table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-parent:""; mso-padding-alt:0in 5.4pt 0in 5.4pt; mso-para-margin:0in; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:10.0pt; font-family:"Times New Roman"; mso-ansi-language:#0400; mso-fareast-language:#0400; mso-bidi-language:#0400;} </style> <![endif]--> Illness forced me to leave Sonoma County and then Marin. Back when I was well I volunteered in the community in so many ways. Now I'm looking for volunteers. Please read on and consider contributing time to a community art project to raise awareness and support for health research and a cure.
Thanks!
~ creekfeet
It effects more Americans than AIDS, breast cancer and lung cancer put together. It causes more functional impairment than diabetes, heart failure or kidney disease. It creates a level of disability comparable to Multiple Sclerosis, chemotherapy or the final stages of AIDS. It strikes men, women and children. It costs the US $26 billion annually. It has occurred in epidemic clusters and may be caused by a transmissible retrovirus. Yet it receives inadequate funding for research, treatment and education, shunted aside by government health agencies. Doctors have nothing to offer their patients but a panoply of misdiagnoses or no diagnosis at all, and inadequate testing and treatment. Jobs, homes, marriages, friendships, the possibility of parenting, community activity, all fall by the wayside for the millions suffering from ME/CFS.
<o:p> </o:p>
One researcher and author on this disease has pointed out:
<o:p> </o:p>
“In the middle 1980s, families who had lost a relative to AIDS decided to create an AIDS memorial quilt. Everyone made a “block” and one day in 1987 they brought their quilt blocks to the mall in front of the <st1:country-region w:st="on">U.S.</st1:country-region> capitol building in <st1:place w:st="on"><st1:state w:st="on">Washington</st1:state></st1:place>. These panels covered a space larger than a football field. People stood together in huddles, weeping openly. Half a million people visited the Quilt that weekend. For AIDS patients, the quilt was a game changer.” -Hillary Johnson, author of Osler’s Web
<o:p> </o:p>
We’re ready for a game-changer for ME/CFS: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A group of people with ME/CFS has come up with an engaging project design that could be as effective as the AIDS quilt, but we can’t do it on our own, sick as we are. We need healthy people who care, to make it happen. For more project details and volunteer opportunities, please contact [email protected].
<o:p> </o:p>
Thanks!
~ creekfeet
It effects more Americans than AIDS, breast cancer and lung cancer put together. It causes more functional impairment than diabetes, heart failure or kidney disease. It creates a level of disability comparable to Multiple Sclerosis, chemotherapy or the final stages of AIDS. It strikes men, women and children. It costs the US $26 billion annually. It has occurred in epidemic clusters and may be caused by a transmissible retrovirus. Yet it receives inadequate funding for research, treatment and education, shunted aside by government health agencies. Doctors have nothing to offer their patients but a panoply of misdiagnoses or no diagnosis at all, and inadequate testing and treatment. Jobs, homes, marriages, friendships, the possibility of parenting, community activity, all fall by the wayside for the millions suffering from ME/CFS.
<o:p> </o:p>
One researcher and author on this disease has pointed out:
<o:p> </o:p>
“In the middle 1980s, families who had lost a relative to AIDS decided to create an AIDS memorial quilt. Everyone made a “block” and one day in 1987 they brought their quilt blocks to the mall in front of the <st1:country-region w:st="on">U.S.</st1:country-region> capitol building in <st1:place w:st="on"><st1:state w:st="on">Washington</st1:state></st1:place>. These panels covered a space larger than a football field. People stood together in huddles, weeping openly. Half a million people visited the Quilt that weekend. For AIDS patients, the quilt was a game changer.” -Hillary Johnson, author of Osler’s Web
<o:p> </o:p>
We’re ready for a game-changer for ME/CFS: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A group of people with ME/CFS has come up with an engaging project design that could be as effective as the AIDS quilt, but we can’t do it on our own, sick as we are. We need healthy people who care, to make it happen. For more project details and volunteer opportunities, please contact [email protected].
<o:p> </o:p>