PDA

View Full Version : Friends of David Om, please read this



pbrinton
05-11-2008, 11:16 PM
Sunday May 11.

With a very heavy heart I must inform you that David has been diagnosed with an aggressively malignant tumor on his brain. No decision has been made yet concerning treatment; he was diagnosed this morning.

Over the past few weeks David had been experiencing symptoms including trembling in his right hand and increasing difficulty in expressing himself. He says that he can think clearly, and hear the words in his “inner voice”, but when he tries to say them, he cannot. Last night I became so concerned that I persuaded him to let me take him to the emergency room.

It seems the tumor has grown large enough to affect these functions, and if left untreated will continue to have increasing and unpredictable effects until he falls into a coma and dies, probably in less than six weeks.

The recommended treatment is surgery followed by radiation. There is no certainty that the surgery will improve matters; in some cases it makes them worse. The median survival time, given surgery and radiation, is nine months.

The neurosurgeon also expressed the opinion that, given the size and extent of the tumor it is quite possible that even though he thinks he can think clearly, his reasoning ability may already be compromised, which makes it very difficult to reliably ascertain his wishes.

He had previously appointed someone he trusted to make health care decisions in the event of his incapacity. She will be arriving tomorrow (Monday) morning, to talk to the doctor and to David.

Although I have been a close friend of David’s for seventeen years, I have never heard him express an opinion or desire in matters of this kind. I have my own opinion, based on what I do know of him, about what his choice would be given these circumstances, but if he has specifically discussed it with any of you, please let me know as soon as possible by email ([email protected]). I will pass any information on to the decision maker.

David says that he would very much appreciate visits from his friends. However obviously any more than one or two at a time would be hard on both David and the hospital staff. I think it would be best if people would be willing to contact me before visiting, telling me when you would like to visit (preferably a range of times.) I will try to make sure that everyone does not arrive at once. Email would be best, but you can also call me on (707) 479-6124. I may not answer, as my life is a little full right now, but I will get back to you. He is at Memorial Hospital in Santa Rosa.

I would also like to say that I have nothing but praise for the staff at Memorial. As soon as I described his symptoms they had him inside and hooked up immediately They were friendly, helpful, kind and above all skillful throughout a very distressing experience.

I will post updates when there is further information. Please email rather than calling if at all possible.

Patrick Brinton
pbrinton@sonic,net
(707) 479.6124

pbrinton
05-12-2008, 09:56 PM
Monday May 12

Dear Friends

Here is the latest bulletin on David's condition. First of all the doctors have established that the brain tumor is the primary location, which means that it has not metastasized from somewhere else, which would have made surgery futile.

He has decided to go ahead with the surgery, which I must admit surprised me. However he is lucid and much more coherent today than yesterday, probably as a result of the drugs that he is being given to reduce the swelling in his brain. The surgery is scheduled for Thursday morning, and I would ask that you all hold David in your prayers for a good outcome.

The long-term prognosis is unchanged; he will also require radiation, and the almost certain prospect is that the cancer will return, and at that point it will be inoperable. These measures are life-extending not life-saving.

However we must not lose sight of the fact that miracles do happen, and spontaneous remissions have been known to happen. David is one of the strongest people I know, and has a powerful life force. He has more stamina that I do, and I am eleven years his junior.

David is the most selfless person I know, and in all the years I have known him, as friend, collaborator and occasional business partner he has never to my knowledge performed a mean-spirited or malicious act, something I cannot say for more than a tiny handful of people, certainly not of myself. Perhaps it is selfish of me to want to keep him here with us; I am by no means certain that this life is the best option available, and David's life has not been a physically comfortable one. While part of me dreads seeing him shaved and scarred and so deeply assaulted, another part cannot conceive of a life that does not include the light and warmth of his presence. So I have very mixed feelings about the path we are embarking on, but David has made his choice and now we must support him in it.

There is still space for visitors Tuesday and Wednesday, but obviously after the surgery it will be several days before he is will be able to receive guests. Please email me (preferably) or call me on 479-6124 if you would like to visit. Right now he is still in Intensive Care, but only because there is no room available. He will probably be moved tomorrow, in which case the restriction on how many visitors he can have at a time will be somewhat eased.

After the post-surgical recovery period he will be discharged from Memorial, and will receive radiation as an outpatient. It is highly unlikely that he will be able to work, and will probably require home care. There are services available to provide some of this, but the bottom line is that he has no savings and will have no way to earn money. David has always given of himself far in excess of what he has charged, and I am sure that some of the beneficiaries of that generosity will want to repay him some of it now in his hour of need. It has also been suggested that we should put on a benefit for him, so if anyone would want to donate their talents to that, please let me know.

Does anyone out there have any experience in setting up a trust account to receive donations? Perhaps someone would be willing to set up a web page? (I have a site that could host it). Long story short, there are many things the community can do to help David who has so helped the community, but they require organization. I would be grateful for volunteers.

If you now of anyone who should read this who might not see it, please send them a link to this thread (https://www.waccobb.net/forums/showthread.php?t=36003).

Patrick Brinton
[email protected]

pbrinton
05-15-2008, 03:01 PM
Wednesday May 15, 3:00 pm

Dear Friends

Just a quick note to say that David is out of surgery, awake, alert and in full possession of his faculties, and he can move all his parts.

He will not be able to receive visitors at least until tomorrow, maybe longer; I will post an update when I know more.

This does not change the long term prognosis, but as we say, while there is life there is hope, and I have been hearing about a lot of miracles lately.

More later

Patrick

helenscott08
05-15-2008, 08:35 PM
Hi to Pat Brinton.. I have had David work on my computer and that of others I know many times...He is a genius and very, very determined so I believe he will win this battle..

Here is LINK to a WONDERFUL site that will be exactly what you are looking for, in that it is a place people can request help for such cases as David's, and people can go there and donate...check it out. I found it on the critters site here on Wacco.

https://www.fundable.com/

I hope this helps David a lot.

Thank you for being his friend...please give David my best wishes.

helen scott
707-324-3108



Sunday May 11.

With a very heavy heart I must inform you that David has been diagnosed with an aggressively malignant tumor on his brain. No decision has been made yet concerning treatment; he was diagnosed this morning.

Over the past few weeks David had been experiencing symptoms including trembling in his right hand and increasing difficulty in expressing himself. He says that he can think clearly, and hear the words in his “inner voice”, but when he tries to say them, he cannot. Last night I became so concerned that I persuaded him to let me take him to the emergency room.

It seems the tumor has grown large enough to affect these functions, and if left untreated will continue to have increasing and unpredictable effects until he falls into a coma and dies, probably in less than six weeks.

The recommended treatment is surgery followed by radiation. There is no certainty that the surgery will improve matters; in some cases it makes them worse. The median survival time, given surgery and radiation, is nine months.

The neurosurgeon also expressed the opinion that, given the size and extent of the tumor it is quite possible that even though he thinks he can think clearly, his reasoning ability may already be compromised, which makes it very difficult to reliably ascertain his wishes.

He had previously appointed someone he trusted to make health care decisions in the event of his incapacity. She will be arriving tomorrow (Monday) morning, to talk to the doctor and to David.

Although I have been a close friend of David’s for seventeen years, I have never heard him express an opinion or desire in matters of this kind. I have my own opinion, based on what I do know of him, about what his choice would be given these circumstances, but if he has specifically discussed it with any of you, please let me know as soon as possible by email ([email protected]). I will pass any information on to the decision maker.

David says that he would very much appreciate visits from his friends. However obviously any more than one or two at a time would be hard on both David and the hospital staff. I think it would be best if people would be willing to contact me before visiting, telling me when you would like to visit (preferably a range of times.) I will try to make sure that everyone does not arrive at once. Email would be best, but you can also call me on (707) 479-6124. I may not answer, as my life is a little full right now, but I will get back to you. He is at Memorial Hospital in Santa Rosa.

I would also like to say that I have nothing but praise for the staff at Memorial. As soon as I described his symptoms they had him inside and hooked up immediately They were friendly, helpful, kind and above all skillful throughout a very distressing experience.

I will post updates when there is further information. Please email rather than calling if at all possible.

Patrick Brinton
pbrinton@sonic,net
(707) 479.6124

pbrinton
05-16-2008, 12:02 AM
Thursday May 15th, late

I went to visit David tonight. Perhaps the word "alert" in my last post was a little bit of an overstatement; I found him pretty groggy. But the nurse said they were not worried, and he is where he should be considering what he has been through. Even in this state he was trying to make jokes (not very successfully, unfortunately, as he still has some trouble expressing his thoughts.) However he was not in pain, though as he is hooked up- to an array of monitors and devices. he is not very comfortable. I am sure his condition will improve quickly.

For the moment I think it would be good not to over-stimulate him, but he does appreciate company, so maybe anyone wishing to visit Friday or Saturday would check with me first so we can avoid several people arriving at the same time. Although they do stretch the rules when they can, officially only three people at a time are allowed, and they sometimes enforce that, especially when the patient is recently out of surgery. My number is at the bottom of each post.

Now we have passed this major milestone, which in anticipation and experience has been consuming what attention I could spare from my business (which, thank goodness, has also been demanding recently) it is time to think slightly more long-term, so starting to morrow I would like to begin looking into dietary and lifestyle ways that people have, it seems, cured themselves of terminal cancer. Thank you to everyone who has sent me information about this; be assured I will put it to use.

Also there is the question of David's future care, and where he will live while he is recuperating. Ideally I am sure he would prefer to live at home, and Medicare will provide home help and other services. I have had several offers of home care and food preparation, and I am open to more; usually spreading the load helps!

I think that something that would really help in his recovery is for his home to be a pleasant and welcoming environment. David has never been very kind to himself in this regard, and his house is more office than home. Perhaps with a little work and ingenuity we could, without totally changing its character, effect some improvements.

There has also been a suggestion about doing a benefit (and Barry has kindly offered to support such an effort with free advertising).

All of these things require organization, and I have very little time to devote to them, so perhaps the first order of business is to ask if anyone feels able to take on the direction of any of these areas of effort, and we can all get together and talk about how we might set about them. When I have had time to think a little I will post a time and place for a get-together.

Thank you to the host of people who have phoned, emailed and visited. David has several times expressed how moved he is by the number of people who have gone out of their way to support him through this,

Patrick Brinton
(707) 479-6124
[email protected]

pbrinton
05-18-2008, 09:49 PM
Sunday, May 18

David was moved today from the ICU into a regular room. He is now in the East Wing at Memorial Hospital, in Room 104 (if my memory serves me correctly. I am a little tired right now, and it may have been 114; they will know at the nurse’s station.) He is know there as David Omeara. Visiting hours are from 10:00 am till 8 pm, and I would encourage his friends to visit. There are fewer restrictions where he is, so I don’t think it is necessary to check in with me before visiting; even if someone else is already there, it should not be a problem. He has a phone by his bed, which you can reach by calling the main switchboard (543-2570) and asking for him by name.

He is making good progress, and other than one uncomfortable physical symptom that happens once in a while, and a continued difficulty expressing his thoughts in words (though he says he thinks clearly), he is comfortable and in good spirits. He has several times expressed to me how moved he is by the number of people who care about him.

Patrick Brinton
[email protected]

pbrinton
05-27-2008, 09:01 AM
David was released from Memorial last week, and is at present staying with his daughter in Walnut Creek. He is to start radiation and chemo in the next couple of weeks, and ideally he would do this in Santa Rosa. However this raises some serious logistical issues.

He will be having to undergo treatments five days a week for about 6 weeks in Santa Rosa, and traveling back and forth from Rio Nido is not practicable. The treatments will likely make him nauseous, and driving a curvy road afterwards would put too much strain on him. In addition he will need someone living with him, as the doctors say he should not be alone during this time. His house is not set up for two people right now.

So if he is to remain in the community and among his friends during this period, it seems we will have to find him a place to live either in Santa Rosa or Sebastopol for a couple of months, and a full time caregiver. Ideally we would like to find a short-term rental/sublet or shared living arrangement for him. If anyone knows of such a thing available, please contact me ([email protected], or (707) 479-6124). Also if anyone knows of a person suitable to provide care. This would mainly be housekeeping/food prep/transportation rather than nursing care. Many people have volunteered to help out, and we will be calling on anyone willing to fill in where needed, but it does not seem practical to hope to provide 24-hour care on a volunteer basis.

Anyone with ideas as to how to fulfill these needs, please feel free to contact me.

Thank you all for your help and support.

Patrick Brinton
[email protected]
(707) 479-6124

pbrinton
06-04-2008, 09:13 PM
Wednesday June 4, 2008

David has decided not to do the chemotherapy and radiation. Instead he will move back to his house, and follow the guidance of Christopher Thompson, the Santa Rosa man who has evidently cured himself of a brain tumor. Thanks to all of you who alerted me to his story; after talking to him, David is very eager to try his approach. On a personal note, I must say that I am not surprised at this turn of events; in fact I was much more surprised that he elected to go for the standard approach. While one cannot really know how one would feel when faced with such a decision, I believe that I would make the same choice. It would be different if the treatment promised a good chance of long-term survival, but all that they were offering was extension of life, and at what cost? The treatment itself is devastating to the quality of life.

And now to practicalities. David will need someone around pretty much all the time for a while. A close friend will live in a trailer in David’s yard, which is legal in the case of medical necessity. However access is difficult, and could be considerably improved by some grading, so if anyone has resources or expertise in that area please contact me.

Until that, and a couple of other aspects of his living arrangements can be taken care of, it would be wonderful to have some kind of local accommodation for David so that he can return to his community. While his family are very caring and supportive, he misses his friends and being in the flow of life. If anyone has a space he could occupy for maybe two or three weeks, it would be a great blessing. He does not need nursing, just someone nearby in case he needs help. In-Home Support Services will provide for help according to need.

Patrick Brinton
707 479-6124
[email protected]

HandyDoItAll
06-05-2008, 02:04 PM
Wednesday June 4, 2008

David has decided not to do the chemotherapy and radiation. Instead he will move back to his house, and follow the guidance of Christopher Thompson, the Santa Rosa man who has evidently cured himself of a brain tumor. Thanks to all of you who alerted me to his story; after talking to him, David is very eager to try his approach. On a personal note, I must say that I am not surprised at this turn of events; in fact I was much more surprised that he elected to go for the standard approach. While one cannot really know how one would feel when faced with such a decision, I believe that I would make the same choice. It would be different if the treatment promised a good chance of long-term survival, but all that they were offering was extension of life, and at what cost? The treatment itself is devastating to the quality of life.

And now to practicalities. David will need someone around pretty much all the time for a while. A close friend will live in a trailer in David’s yard, which is legal in the case of medical necessity. However access is difficult, and could be considerably improved by some grading, so if anyone has resources or expertise in that area please contact me.

Until that, and a couple of other aspects of his living arrangements can be taken care of, it would be wonderful to have some kind of local accommodation for David so that he can return to his community. While his family are very caring and supportive, he misses his friends and being in the flow of life. If anyone has a space he could occupy for maybe two or three weeks, it would be a great blessing. He does not need nursing, just someone nearby in case he needs help. In-Home Support Services will provide for help according to need.

Patrick Brinton
707 479-6124
[email protected]



My heart goes out to you and David. I lost my mother to a Glioblastoma Multiforme Brain Tumor (the most aggressive) over 2 years ago. We were given no operative options, and a certain death diagnosis of 3-6mo to live.

I did thousands of hours of research on the web and we tried many alternative therapies including a special clinic. In short, although a she did not make it, we arrested the growth of the tumor and extended her life over 1 year. I believe that had we caught my mothers tumor earlier or had it been operable we might have saved her with alternative care.

I am now seeing more and more miracle cures, and several brain tumor cures have been reported from a simple regular diet (Budwig Diet) of cottage cheese mixed with Flax oil twice daily (under #2 below). I am so happy David is choosing alternative care and that someone is working with him that has had success. Its probably presumptive of me and I know you and David have probably been flooded with all kinds of info. but I just thought I would pass on this list of some of the best web site info. I had found. I hope it helps, take care. Lin Allen

1) www.Healingcancernaturally.com (https://www.healingcancernaturally.com/) Excellent...Please check out the Budwig diet and protocol (100pages) (this is the cottage cheese and flax 2times daily) and be sure to click on her testimonials for brain tumor cures...this stuff has completely cured all kinds of cancers.

2) www.CureZone.com (https://www.curezone.com/) has a "the cancer Homepage"

3) www.mnwelldir.org (https://www.mnwelldir.org/) Brings up International Wellness site, Click Articles, then click on Main articles which takes you to Minnesota Wellness Directory, a site which has been around for years. This site offers a wealth of info. on Breast cancer and Check under "Alternative Cancer Therapies" for all the major and minor alternative cancer cures gives you excerpts on Alternative Cancer Therapies. Lot's of frank info. about what works best. Check out "Ellagic Acid" - in raspberries, a cup a day (fresh, frozen or dried) kills thousands of cancer cells.

4) www.cancertutor.com (https://www.cancertutor.com/) Fabulous in depth info. on top 15 cancer cures. Very extensive site. This is a must see site for the information. He adds lots of info. about how bad the pharmaceutical gangs have corrupted alternative and natural cures, but don't miss the good. About half way down the site you'll get to a chart where you can click on each cure for in depth info.

5) www.Drclark.net (https://www.drclark.net/) Dr. Hulda Clark is well known to be one the best and well trusted alternative resources.

6) www.HHMI.org (https://www.hhmi.org/) Howard Hughes originally set up this Medical research institute, cherry picking some of the best scientists in the world and in his typical rogue way, structured it to be completely independent of the medical and pharmaceutical industry. They are looking for real cures and do not work with or take donations from Pharmaceutical companies, We may end up with a real cure for cancer. Check out the research articles.

7) www.cancerdecisions.com (https://www.cancerdecisions.com/) or www.ralphmoss.com (https://www.ralphmoss.com/) This is the "Moss Reports" by a PhD who has dedicated his life to cancer research. He does a comprehensive $350.00 book/report comparing the best western medicine and alternative treatments for the specific cancer you request it on. Reports on the web and first hand state his info. is thorough and worth the money. In my opinion He leans slightly more towards the western medical, but still does excellent research on all.

boomerfashion
06-06-2008, 07:34 AM
Hi Patrick,

I don't know David Om but I had a thought.....perhaps when he is living back at his home (or even before that) it would be helpful to have some nourishing, home cooked food delivered to him daily or as often as possible.

I would be willing to volunteer for some of those meals and if you needed someone to coordinate it, a list of friends, family and their phone numbers is all I'd need and I could put a schedule together so he always has what he needs in terms of food. Or, if you think this i s a good idea, I could post a request and people could send me their names, phone numbers and availability and I could organize directly.

Volunteering for this helps support David but also helps me as it is satisfying to feel in service. Plus, this is something I am good at so hopefully nothing would fall through the cracks. He is fighting for his life and he deserves every support possible. He sounds like a wonderful guy with many people who care about him.

So let me know if this is something you think he would want. If it's already covered, I would be willing to drop off occasional meals (I am in Penngrove so it's a haul; It wouldn't be practical for me do it daily).




Wednesday June 4, 2008

David has decided not to do the chemotherapy and radiation. Instead he will move back to his house, and follow the guidance of Christopher Thompson, the Santa Rosa man who has evidently cured himself of a brain tumor. Thanks to all of you who alerted me to his story; after talking to him, David is very eager to try his approach. On a personal note, I must say that I am not surprised at this turn of events; in fact I was much more surprised that he elected to go for the standard approach. While one cannot really know how one would feel when faced with such a decision, I believe that I would make the same choice. It would be different if the treatment promised a good chance of long-term survival, but all that they were offering was extension of life, and at what cost? The treatment itself is devastating to the quality of life.

And now to practicalities. David will need someone around pretty much all the time for a while. A close friend will live in a trailer in David’s yard, which is legal in the case of medical necessity. However access is difficult, and could be considerably improved by some grading, so if anyone has resources or expertise in that area please contact me.

Until that, and a couple of other aspects of his living arrangements can be taken care of, it would be wonderful to have some kind of local accommodation for David so that he can return to his community. While his family are very caring and supportive, he misses his friends and being in the flow of life. If anyone has a space he could occupy for maybe two or three weeks, it would be a great blessing. He does not need nursing, just someone nearby in case he needs help. In-Home Support Services will provide for help according to need.

Patrick Brinton
707 479-6124
[email protected]

Sara S
06-07-2008, 06:22 AM
I do know David, from right after the Creigton Ridge fire in 1978; he came over and helped me lay out a new water line to replace the melted one. I would love to help with the meals. Just let me know where and when and what sort of food he wants to eat.

Sara S.


Hi Patrick,

I don't know David Om but I had a thought.....perhaps when he is living back at his home (or even before that) it would be helpful to have some nourishing, home cooked food delivered to him daily or as often as possible.

I would be willing to volunteer for some of those meals and if you needed someone to coordinate it, a list of friends, family and their phone numbers is all I'd need and I could put a schedule together so he always has what he needs in terms of food. Or, if you think this i s a good idea, I could post a request and people could send me their names, phone numbers and availability and I could organize directly.

Volunteering for this helps support David but also helps me as it is satisfying to feel in service. Plus, this is something I am good at so hopefully nothing would fall through the cracks. He is fighting for his life and he deserves every support possible. He sounds like a wonderful guy with many people who care about him.

So let me know if this is something you think he would want. If it's already covered, I would be willing to drop off occasional meals (I am in Penngrove so it's a haul; It wouldn't be practical for me do it daily).

Thalia
06-07-2008, 05:48 PM
I saw this web site and thought it might offer you some help in orchestrating this process for David and his loved ones. I met him several years ago and his warmth and sincerity touched me deeply.

www.caringbridge.org

I've given care to loved ones in several circumstances over the last few years and my experiences have brought me so so much joy and even elegant challenges. My heart goes out to David and all those who care for and about him. Call on me to help pull tight the weave that we make to hold us all. I willingly sit with silence.