Help ME! Morgellons is killing me!

[Jackieomonroe]

Hi Sonoma county,
I am in desperate need for the assistance of our community members who are familiar with a nano mystery disease. Known commonly as MORGELLONS. I am a sufferer of the physical effects that fit the description of this elusive illness, and as a consequence of the lack in communication, and research by our health providers. I know there are few physicians, and researchers in the know about the cause and of this affliction, but the treatment is vague at best, and limited in accessibility.

For someone like me who is a victim, and lacks the resources to benefit from the possible new treatments made available seems nearly impossible at this point, given the dramatic negative effects of what is a result of losing my ability to function among the community, make money and survival. All that is a dream for me now, but all I can find are doctors who tell me it is all in my head, and I would do best to think more positively about the situation, and maybe that will bring relief.

Well I did that, and this is where it has gotten me. Please, I am in a desperate situation, in hopeful need of assistance from you my community member for answers to this anomaly that carries a high cost of determining my well-being. I risk having to expose myself to public humiliation and criticism in an effort to find someone who can help. It is no less then a matter of life and death for me now. Otherwise, I am faced with the belief that death is the only relief that can come from the ailments of pain and suffering this has brought to my life.

Please, I am a 27 year old who is dying, so far and no one can tell me what the reason is for why I can no longer function like I did over a year ago other then delusions, and depression. However neither of the cures for those diagnosis have prevailed in relief of my physical characteristics either. I don’t know where else to turn other the my community, I thank you all for reading, and I hope everyone can benefit from my experience by just being aware of what is out there potentially harmful to you and your loved ones.

Thankfully hopeful,
Jackie M.
Sasbastopol, Ca
[email protected]

[Artaloha]

Hi Jackie;
I'm so sorry that you're having such a rough time with this weird disease; I know how strange and awful it can be, particularly in light of the fact that it doesn't seem to be recognized as a real disease by doctors (YET!)... It reminds of a friend of mine who, about 20 years ago, suffered from fibromyalgia and a chemical sensitivity problem; it took her a long time to find doctors who believed in her symptoms; since then it's become a "new" disease, as will Morgellons Disease. In the meantime, you need to find a doctor who can help you. I would suggest seeing a naturopath or holistic practitioner; they tend to be a little more sensitive to these unusual disorders, and more capable of helping you get some relief.
I myself had a bout with Morgellons - the strangest thing I've ever experienced! I thought I had ongoing dermatitis on my forearms and couldn't figure out why I kept getting this itching all along my forearms; then one day when I was driving I saw this little red thing poking out of my skin - I thought it was a splinter, but it was right on the site of the itching. I pulled over and stopped, and rather than just brush it off my arm, I decided to wait a while and see what happened. I drove home, ignoring the itching, and it gradually eased off. About 2 or 3 hours later, I happened to look down at my arm and was shocked to see that it had GROWN! It was about 2

[ywv]

Jackie,
I am so sorry that you are suffering with no end in site, I know from personal experience how that is when you are going through a healthcare crisis. My efforts at trying to find more information, basically said contact the CDC.
If you have no insurance coverage for you disease or the mental strain of handling it please look at this link (https://www.sonomacountyhomeless.org/resource_guide.php) for free and low cost medical care/help.

Best of luck,

Yvette

Morgellons disease: Managing a mysterious skin condition
By Mayo Clinic staff
Original Article:https://www.mayoclinic.com/health/mo...isease/SN00043
Morgellons disease is mysterious and controversial. Here you'll find answers to common questions about Morgellons disease — and suggestions for coping with it.

By Mayo Clinic staff
Morgellons disease is a mysterious skin disorder characterized by disfiguring sores and crawling sensations on and under the skin. Although Morgellons disease isn't widely recognized as a medical diagnosis, experts from the Centers for Disease Control and Prevention (CDC) are investigating reports of the condition, which they refer to as unexplained dermopathy.

If you suspect that you have Morgellons disease, you may have many questions about the condition. Here's what you need to know about Morgellons disease, including practical tips for managing your signs and symptoms.

What are the signs and symptoms of Morgellons disease?
People who have Morgellons disease report the following signs and symptoms:

Skin rashes or sores that can cause intense itching
Crawling sensations on and under the skin, often compared to insects moving, stinging or biting
Fibers, threads or black stringy material in and on the skin
Severe fatigue
Inability to concentrate and short-term memory loss
Behavioral changes
Joint pain
Vision changes
Morgellons disease shares characteristics with various recognized conditions, including Lyme disease, liver or kidney disease, schizophrenia, drug or alcohol abuse, and a mental illness involving false beliefs about infestation by parasites (delusional parasitosis).

How widespread is Morgellons disease?
Reports of Morgellons disease have been made in every state in the United States and 15 countries around the world. Most reported cases are clustered in California, Texas and Florida.

What do researchers know about Morgellons disease?
Beyond anecdotal reports, researchers know little about Morgellons disease. The CDC reports no known causes of Morgellons disease and no successful treatment for the condition. Whether Morgellons disease is contagious remains a mystery.

How controversial is Morgellons disease?
Current attitudes toward Morgellons disease fall into various categories:

Some health professionals believe that Morgellons disease is a specific condition that needs to be confirmed by future research.
Some health professionals believe that signs and symptoms of Morgellons disease are caused by another condition, often mental illness.
Other health professionals don't acknowledge Morgellons disease or are reserving judgment until more is known about the condition.
Some people who suspect Morgellons disease claim they've been ignored, criticized as delusional or dismissed as fakers. In contrast, some doctors say that people who report signs and symptoms of Morgellons disease typically resist other explanations for their condition.

How can you cope with the signs and symptoms of Morgellons disease?
The signs and symptoms linked to Morgellons disease can be distressing. Even though health professionals disagree about the nature of the condition, you deserve compassionate treatment. While research continues, take positive steps to manage your signs and symptoms.

Establish a caring health care team. Find a doctor who acknowledges your concerns and does a thorough examination. Since Morgellons disease often requires frequent follow-up visits, a local health care team may be most convenient.
Be patient. Your doctor will likely look for known conditions that point to evidence-based treatments before considering a diagnosis of Morgellons disease.
Keep an open mind. Consider various causes for your signs and symptoms, and follow your doctor's recommendations for treatment — which may include long-term mental health therapy.
Seek treatment for other conditions. Get treatment for anxiety, depression or any other condition that affects your thinking, moods or behavior.
Keep track of the latest news about Morgellons disease. Supplement the information you find online with articles published in peer-reviewed medical journals. Remember that some sources are more reputable than are others.
To learn more about Morgellons disease or to report suspected cases of Morgellons disease, call the CDC Morgellons information and voice mail line at 404-718-1199.

References
SN00043
Feb. 12, 2010

© 1998-2010 Mayo Foundation for Medical Education and Research (MFMER). All rights reserved. A single copy of these materials may be reprinted for noncommercial personal use only. "Mayo," "Mayo Clinic," "MayoClinic.com," "EmbodyHealth," "Enhance your life," and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research.

[AllorrahBe]

Hi Jackie!

My compassionate hears your cry for help, and I applaud you for putting this out here for your community to make suggestions and follow what must be a totally terrifying episode in your life!

Please do all of the things suggested by everyone, especially the Mayo Clinic suggestions!

Have you spoken to Dr. Cindy Zafis? A chiropractor/allergy specialist in the Sebastapol area? I believe she is more "into" strange phenomena, and might have some ideas for you. Perhaps you can email this whole conversation to her, or print it and send it to her.

I believe the best relief you can get can come from inside yourself - through hypnosis. I recommend that you contact David Quigley of The Alchemy Institute in Santa Rosa. He is a true master in Somatic Healing and assisting clients to make changes in their subconscious minds that make powerful transformations in their lives. He teaches all over the world and is a conscious and caring person. David's contact numbers are:
707/537-0495 or 800/950-4984 Alchemy Institute
707/888-8403 Cell
www.alchemyinstitute.com
[email protected]

He may even have something posted on his alchemyinstitute web site... check it out!

If you believe in the power of prayer and want someone to pray with and for you, please feel free to contact me for a referral... no strings attached!

Peace and Light,
Rev. Allorrah Be
Mobile Minister
Circles of Light Ministries
[email protected]

Hi Sonoma county,
I am in desperate need for the assistance of our community members who are familiar with a nano mystery disease. Known commonly as MORGELLONS. I am a sufferer of the physical effects that fit the description of this elusive illness, and as a consequence of the lack in communication, and research by our health providers. I know there are few physicians, and researchers in the know about the cause and of this affliction, but the treatment is vague at best, and limited in accessibility.

For someone like me who is a victim, and lacks the resources to benefit from the possible new treatments made available seems nearly impossible at this point, given the dramatic negative effects of what is a result of losing my ability to function among the community, make money and survival. All that is a dream for me now, but all I can find are doctors who tell me it is all in my head, and I would do best to think more positively about the situation, and maybe that will bring relief.

Well I did that, and this is where it has gotten me. Please, I am in a desperate situation, in hopeful need of assistance from you my community member for answers to this anomaly that carries a high cost of determining my well-being. I risk having to expose myself to public humiliation and criticism in an effort to find someone who can help. It is no less then a matter of life and death for me now. Otherwise, I am faced with the belief that death is the only relief that can come from the ailments of pain and suffering this has brought to my life.

Please, I am a 27 year old who is dying, so far and no one can tell me what the reason is for why I can no longer function like I did over a year ago other then delusions, and depression. However neither of the cures for those diagnosis have prevailed in relief of my physical characteristics either. I don’t know where else to turn other the my community, I thank you all for reading, and I hope everyone can benefit from my experience by just being aware of what is out there potentially harmful to you and your loved ones.

Thankfully hopeful,
Jackie M.
Sasbastopol, Ca
[email protected]